Long-term Outcomes Associated With Juvenile-onset Mycosis Fungoides and Lymphomatoid Papulosis

**Study Overview:** This study is about understanding what happens over a long time to kids and teens who have two rare skin conditions, *mycosis fungoides* (jMF) and *lymphomatoid papulosis* (lyp). The goal is to learn how these conditions affect people as they grow up, including their health over 5 and 10 years. We will also look at the treatments they receive and other health issues that might occur.

**Eligibility:** To join, you must have been diagnosed with jMF or lyp before turning 20. If you're under 18, your parents will answer questions for you.

• 📅 *Study Length:* Long-term follow-up to check on health status over several years.
• 💬 *Participation:* Children do not need to answer questions; parents will do it.
• 💡 *No direct treatment:* This study just involves answering questions about health history and treatments.

**Considerations:** While there is no treatment provided, the study helps doctors understand these conditions better. This can improve future care for children diagnosed with jMF and lyp. There are no risks in participating, as it involves only sharing information.