Juvenile-onset Mycosis Fungoides (jMF) and Lymphomatoid Papulosis (lyp) are rare skin conditions that begin in young people. This study looks at the long-term outcomes for those diagnosed with these conditions. We want to understand how the conditions affect people over time and what treatments have been used.
Primary Goal: We're interested in how well people live with these conditions over long periods, like 5 or 10 years. We also want to see how active the disease is during these times.
Secondary Goal: We'll be looking at the treatments people have used and any other health issues that might be related.
- This study is for people diagnosed with jMF or lyp before age 20.
- We will contact parents for participants under 18 to ask questions.
- The study does not include anyone diagnosed after age 20.