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ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD)

Join our study on Frontotemporal Lobar Degeneration.

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18 years and older
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

The ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD) study is a research project looking to learn more about a brain condition called Frontotemporal Lobar Degeneration (FTLD). FTLD affects the brain's front and side parts, leading to changes in behavior and language. The study includes two main groups:

1. Longitudinal Arm: This group will have detailed check-ups every year, including medical tests, brain pictures, and fluid samples.

2. Biofluid-Focused Arm: This group will provide samples like blood, with fewer tests.

The study includes people with two types of FTLD: familial (runs in families) and sporadic (doesn't run in families). If someone in a family has a specific gene change causing FTLD, other family members might be part of the study. People with Alzheimer's disease, certain brain issues, or other serious health problems can't join. The study helps in designing future clinical trials and understanding FTLD better.

  • Patients participate annually for the longitudinal arm, providing detailed health data.
  • Biofluid arm requires limited assessments, mainly fluid samples.
  • Excludes participants with certain brain lesions or Alzheimer's disease.
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Study details
    Frontotemporal Lobar Degeneration (FTLD)
    Progressive Supranuclear Palsy (PSP)
    Corticobasal Degeneration (CBD)
    Behavioral Variant Frontotemporal Dementia (bvFTD)
    Semantic Variant Primary Progressive Aphasia (svPPA)
    Nonfluent Variant Primary Progressive Aphasia (nfvPPA)
    FTD With Amyotrophic Lateral Sclerosis (FTD/ALS)
    Amyotrophic Lateral Sclerosis
    Oligosymptomatic PSP (oPSP)
    C9orf72
    GRN Related Frontotemporal Dementia
    MAPT Gene Mutation
    TBK1 Gene Mutation
    Oligosymptomatic Progressive Supranuclear Palsy

NCT04363684

Mayo Clinic

22 June 2024

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