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ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD)

Recruiting
18 years and older
Both
Phase N/A
  • Simplified (AI rewritten)
  • Technical (Original)

Frontotemporal Lobar Degeneration (FTLD) is a brain disorder that affects behavior, language, and movement. The ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD) study is a research project aiming to better understand FTLD. Researchers look at two groups: those with a family history of FTLD and those without. They collect information like medical tests and family history over time. This helps create better clinical trials in the future.

The study has two parts: the longitudinal arm, which involves yearly assessments including tests and imaging, and the biofluid-focused arm, which involves collecting samples like blood. Participants must meet certain criteria to join, such as having a family history of FTLD or specific symptoms.

  • Participants can choose between two study paths: detailed yearly assessments or less frequent sample collections.
  • The study involves assessments that may include imaging and sample collection, spread over several years.
  • Eligibility depends on family history and specific symptoms; some conditions might exclude participation.

For more details, visit: ALLFTD website.

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Study details
    Frontotemporal Lobar Degeneration (FTLD)
    Progressive Supranuclear Palsy (PSP)
    Corticobasal Degeneration (CBD)
    Behavioral Variant Frontotemporal Dementia (bvFTD)
    Semantic Variant Primary Progressive Aphasia (svPPA)
    Nonfluent Variant Primary Progressive Aphasia (nfvPPA)
    FTD With Amyotrophic Lateral Sclerosis (FTD/ALS)
    Amyotrophic Lateral Sclerosis
    Oligosymptomatic PSP (oPSP)
    C9orf72
    GRN Related Frontotemporal Dementia
    MAPT Gene Mutation
    TBK1 Gene Mutation
    Oligosymptomatic Progressive Supranuclear Palsy

NCT04363684

Mayo Clinic

22 June 2024

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