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Parkinson's Foundation PD GENEration Genetic Registry

Join our Parkinson's study to explore genetic insights!

Recruiting
18 years and older
All
Phase N/A

This study is collecting genetic information related to Parkinson's Disease (PD) to help future research. Participants will donate their DNA, which is a special code in our body that makes us unique, after a genetic test. This test will check for specific genes like GBA and LRRK2 that are related to PD. If you join, you’ll find out the results of your genetic test. You must be able to read and sign a form that says you agree to join the study.

  • The study requires you to fill out surveys, which can be done online, in person, or on paper.
  • You should be someone with Parkinson's, or at risk if your family gets invited.
  • You cannot join if you have other similar disorders, blood conditions, or are under 18.

This study is about creating a safe place to store PD-related genetic data. This will help researchers in the future understand PD better and maybe find new treatments. Remember, only people with PD can currently join, and you must be willing to learn your genetic test results.

Study details
    Parkinson's Disease

NCT04994015

Parkinson's Foundation

27 June 2024

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FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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